We have all been in a position to do something, but we choose not to... due to the fact there is a program out there to help or that is someone elses responsiblity or maybe someone told you something such as a rumor that made you think better of it. Well my challenge is that from this day foreward before you decide you are not going to help thinkabout the result that if you do not no one is! And that when judgement day comes you will answer the question.. I put this in you path to help, and you...

To a special parent
(On behalf of the child with special needs)

Thank You for believing what many will never understand,
That I am also part of God's great plan.

Thank you for always being there for me,
For helping me as I struggle towards my full potentiality.

Thank you for the countless trips to doctors and therapies,
For the endless hours spent at clinics and IEPs.

Thank you for wiping away my many tears,
For...

Jan 22, we celebrated Alex's fourth birthday! This year he actually helped unwrap his presents and he willingly by himself tasted his icing on his cake twice, he seems to like cream cheese! It is a slow progress, but we are making steps. He has out grown his wheel chair seat and we now have to get him a bigger one. He is now at 39 lbs and 41 and a half inches long.

Today we were told Nickolas will be a prim candiate for this therapy. They place electodes on his face and neck and give him gentle shocks to stimulate his nerves and muscles so he can swallow and maybe even learn to move his vocal cords. We are putting it off for a little while so he may become more stable with his blue spells. In the past vibrating teething rings, cold sensations and warm sensations have triggered these spells, so maybe with a little more time we may be able to start this therapy....